Posts tagged “cerebral palsy”

During this period of Lockdown many of us are having trouble sleeping and its no surprise with COVID-19 being a worrying time. 
 
A new survey commissioned by three leading bodies championing sleep, ‘Sleepstation’, ‘The Sleep Council’ and ‘The Sleep Charity’, report that 43% are now finding it harder to fall asleep, with unease around the current COVID-19 situation affecting sleep for 75%. Interestingly, it also found that women are more likely to suffer from anxiety associated with coronavirus and are twice as likely to report feeling stressed compared to men. 
 
Sleep can be disturbed in many ways with feelings such as feeling restless, waking up during the night, wide awake, having nightmares and finding it hard to relax and switch off. Sleep is so important for our health and well-being, it can affect memory, immune system, energy levels, mood, appetite, your mental health and even your happiness! So, we perhaps need to make some changes to our day to get sleeping better and in turn feeling better. 
 
Coronovirus Service Update from Cerebral Palsy Midlands 
 
Cerebral Palsy Midlands continue to be committed to supporting our citizens, families, carers and our local community with cerebral palsy and other disabilities in the most suitable and available ways to us. 
 
Our centre has been closed until Government Guidelines allow us to re-open, we continue to be guided by Public Health and our Local Authority. Furthermore, all of our Pathfinders Social Clubs, centre events and fundraising events have been cancelled until further notice. 
 
Still supporting our community 
 
We are still able to respond to messages left on our main telephone line 0121 427 3182 and via info@cpmids.org.uk. 
 
Our staff have been making regular telephone calls/texts/emails to all of our citizens during this period to check on their health and wellbeing 
 
For those citizens with access to the internet we have been running weekday social chats at 1pm daily. 
 
We have also been running a programme of online activities via our Cerebral Palsy Midlands Facebook Page https://www.facebook.com/CerebralPalsyMidlands/ and through Zoom Sessions. These have included live performances, wheelchair dance, seated tai chi sessions, art and cookery videos, quizzes, storytelling and more. 
 
Below is our YouTube video that shows what we have been doing to support our CPM community during this period of Lockdown https://youtu.be/Vpn3mkXwklA
 
We wish you all well, keep safe and we sincerely hope that we will soon be able to open our doors again in the not too distant future. 
 
We will keep our website and Facebook Page up to date for any further changes or as to when our services will re-open. 
 
You can access the most current advice and guidance from Public Health England here. 
 
Please contact Development Officer Sarah Lilly via email sarah@cpmids.org.uk for any queries, I will be picking up emails during our centre closure. 
 
Please pass on and forward this message to any relevant sources. 
My name is Sophie Abel and I am 23 years old. Like most children I went to school then to college to do my BTec’s. University felt like a natural next step after my positive experiences in the academic sector so far. My tutors at college and my family were very supportive in my want to go to university. As my family have all had academic backgrounds, I never questioned that I would go to university as well. I thought my Cerebral Palsy would affect what course I would do and where and worried my Cerebral Palsy would mean university would be to difficult for me. Despite this I was eager to go and at least try. After some long and important decisions, I decided to study Media Culture and Production and Southampton Solent University. 
Despite the planning and preparation that went into studying this course at this university, events played out and the overall experience was not a pleasant one. I can now reflect on the experience and reassure others that it was not due to my Cerebral Palsy that I had this negative experience, rather that the tutors and people that surrounded me. I had to take a step back and decide on my next move, knowing the aspect of my disability and its restrictions were not culpable for my bad experiences at university. 
 
Fast forward a year and I decided try university again, this time studying Creative writing and Journalism at De Montfort University. I learnt from my experience at Southampton Solent University and picked a university closer to home with regular trains operating between Leicester and Birmingham. Although it wasn’t the journey itself that was the issue, living so far away from home left me feeling more vulnerable. While I don’t think you should be limited in where you go, on a practical level it can be beneficial to stay nearer home in some situations. 
 
The accommodation was fully kitted out for a disabled person, with the hoist going from my bedroom to the ensuite bathroom, along with 2 alarm systems that I can use in case of an emergency. Using my negative experience at Southampton Solent University, I threw myself into life at DMU with energy and vigour. I felt I had to be mindful of certain decisions; going around campus I had to be sure of access and lifts because of my Cerebral Palsy. I also had to keep in regular contact with the tutors so they knew where I was on a unit and any further support, they could give me. By being pro-active with communicating with your tutors I felt my Cerebral Palsy didn’t have to affect me academic performance as I was given forewarning and advice along the way. 

Sophie Abel blogging for  #WorldCPDay  Sunday 6th October 2019 A global campaign raising awareness for cerebral palsy 

Cerebral Palsy Midlands hosted a Wild West Murder Mystery evening yesterday on Monday 15th July as part of the Pathfinders once a month social club for adult citizens with disabilities, their families, friends and carers. 
The centre had been decorated with a Wild West theme and all of the citizens and staff got dressed up in Western fancy dress and got into characters as Cowboys, Indians, Outlaws etc. 
 
Harborne Community Police came and supported the evening and arrested one of our suspects for fun, our Centre Manager Gary Watson - who was known as Gunsmoke Gary. 
 
Clues were given out during the course of the evening and in the end the new Barmaid Melons Ally was caught running away with the gold! We all had a huge amount of fun. 

The Video above shows a quick glimpse at the fun we had at our Wild West Night 

Cycling to help five great charitable causes, our friend and Mondelez Community Champion Michael Huggins will be cycling from Villa Park this Sunday 26th May finishing at Wemley stadium on Monday 27th May. 
Whether your an Aston Villa Football Club fan or not, you've got to admit this cycle is definetely challenging and he definately deserves some support?! Well we at Cerebral Palsy Midlands definately think so. 
 
Michael is cycling to raise awareness support and fundraise for his five top nominated charities this year; 
Acorns Children’s Hospice 
Sandwell Advocacy 
Primrose Hospice 
Macmillan Cancer Research 
 
Michael had made the commitment before their last played match that if Aston Villa FC won West Bromwich Albion he was going to set off for an ambitious cycle to Wembley Stadium for the Aston Villa play off final. AND they did win 1-0 securing their place in the finals and leaving Michael with a huge challenge ahead! 
 
The journey has been split in to two parts to ensure his arrival for the start of the match, Sunday, Michael will cycle to Milton Keynes (70 miles), stay over for the night and then cycle to Wembley Stadium (50 miles) on Bank Holiday Monday. 
 
To follow his progress Michael said; 
"The best way to follow my progress will be on Twitter @michaelah1874 but I must warn you in advance that on Sunday you will most likely see photos of me stopping in coffee shops along the route tucking into a carrot cake than me banging out the miles😂 
 
On Monday if I have not put on too much weight I will be pushing the speed a bit more as I hope to arrive on Wembley Way between 11am and 12pm." 
 
Care First Limited, an independent specialist training provider have been teaching our adults at Cerebral Palsy Midlands for three years. 
 
Their teams of staff are dedicated to helping all its learners to achieve their ambitions and potential, at a pace they are comfortable with, in a friendly, supportive and fun environment. 
 
The group are working towards accredited 'City and Guild' qualifications covering topics in Cooking, English, Community Development, Independent skills and more. 
 
Care First Ltd sessions take place twice a week on Tuesdays and Fridays in our Media Room, two full days of interactive teaching. 
 
 
Snippets from the ‘Life Story’ Chris wrote. 
I was born on 14th June 1949 at Mary Stevens Maternity Home, Oldswinford in Stourbridge. My mom Florrie Turner and my dad was Robert Turner, both named me Christopher Robert Turner and we lived in Halesowen. 
 
When I was 5 years old we moved to Cradley Heath and in 1954 I joined Carlson House School. 
 
In 1967, aged 18 I left Carlson House School and stopped at home for one year, then 22nd March 1968 I joined the MSA Centre. I was 19 then and I made two very special friends, Roger Smith and John Hill. 
In November 1988 Chris’s dad Robert Turner died of a heart attack, this left Chris and his mom in need of help and they were then granted ‘home help’ assistance twice a week. 
 
In September 1989 MSA (Midland Spastic Association, as it was called many years ago before Cerebral Palsy Midlands) organised a holiday to Pontins Holiday Camp in Brean Sands, Chris went with friends Gary Ironmonger, Irvine Clive Brown and Roger Smith. “Some of us went out dancing in the ballroom and at other times we went to Somerset Nightclub to see some acts i.e. magic. On the last night (Friday) the MSA staff gave us a nice night out. They book us a dinner outside of the camp at Somerset’s leading night spot (The Farmers Tavern). The weather was good for the weeks holiday”. 
 
In November 1989 Chris’s mom was taken ill and went in to hospital to stay. Chris at the time was staying at a MSA managers house until he could find accommodation. He was referred to Social Services and they tried placing Chris at a place at Langley Court in Oldbury but Chris didn’t like it, he said that there were bad people there. 
 
There was a period where Chris didn’t have a residence as was staying at people’s houses and trying places that social workers had referred him too in between seeing his mom in hospital. But then on the 18th November, Chris received the sad news his mom had passed away. 
 
Chris’s cousin Tony helped Chris move to a place in Selly Oak called Prospect Hall to see how he could live on his own independently for a year. This was successful for Chris, he proved he was able to live independently and a year later with some more help from social services Chris was offered a tenancy at 17 Alasdair House, Harborne (Next door to MSA) in 1990 with Century Housing Association. Chris had the flat painted and was given some grant funding to get his flat furnished and he officially moved in 27th August 1990. This was the start of a great beginning for Chris with a permanent home and a place to make new friends. It was arranged for Chris to have care as well to help him buy food and clean his flat and at one point in time Chris had Meals on Wheels bring his meals daily. 
 
The CPM Connection have only gone and launched their second album "Double Seconds". The album celebrates the talent that our artists have and encapsulates their pure expression. We are very proud of their achievements and look forward to their next showcase and Gig. 
 
The album is performed by' The CPM Connection' and also features 'Beats by Sean'.  
Tracks include:  
1. Chill Rock  
2. Tuesday Pop  
3. The Aliens Are Coming  
4. Land of Nod  
5. Fantastic Four  
6. Rest of the World  
7. Two Lads  
8. Simon's Dream  
9. The System  
10. Wake Up  
11. Roller Rain Hands  
12. Lazer  
13. May Banger  
14. Rise Up  
15. All Mouth  
16. Cyborg  
17. Outsiders  
18. Superman  
19. Every Night I Hear The Waves  
20. Double Seconds  
Recorded and produced by Matthew Philip Hale, with great help from Ben Linstead. 2018. 

Click below to hear 'Double Seconds'  on Spotify 

Click below to hear the album on You Tube 

 
Harborne charity Cerebral Palsy Midlands based on Victoria Road are holding their annual Summer Sizzler Monday 20th August between 1 and 8pm and we are looking for support from our local community;  
 
Would a dance group like to perform?  
Are their any talented acoustic musicians that could play in our garden?  
Could anyone help with raffle or tombola donations?  
Would you be interested in having a stall and have your own table?  
Can you do glitter tattoos or henna?  
Can you contribute by making some home made cakes for us to sell?  
 
We want this to be a successful event, in our local community and everyone is welcome in, we are an inclusive centre, we will have lots of games, a BBQ, Dudley Zoo small animals, we will have Princess Belle to meet and grab a selfie with. If you can support us comment below or email me sarah@cpmids.org.uk or call 0121 427 3182 ext 3. 
 
Community Champion Katey Titley from Asda Barnes Hill presented Cerebral Palsy Midlands (CPM) with a cheque for £347.00 yesterday (Wednesday 13th June 2018), money the Asda Foundation has cash matched from a football fundraiser back in April this year. 
 
Sunday 15th April, CPM staff and friends challenged ASDA Barnes Hill staff & friends to a charity football match raising money for Harborne Registered Charity Cerebral Palsy Midlands. The event was held at QAC Sports Hall in Harborne and was successful in raising £347.00. 
 
We as a charity are overjoyed that The Asda Foundation have supported us again and have matched funding, this takes the total raised to £694.00. All for hosting a friendly football match! We are hugely grateful to have our local Asda supporting the community of disabled people and their families that we work with. A huge thank you from all of us at Cerebral Palsy Midlands. 
CPM's Paul, David, Heather, David and Katie from Asda 

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